'In quietness and confidence shall be your strength.'
Isaiah 30:15b

Things have been very uneventful for us since the last blog post.

Noah has been doing wonderful! He is so very happy and we are very much enjoying life at home. We have even taken Noah to church a couple of times now and I've also been able to attend Women's Society twice, for the first time in months!

Days go by quickly, getting filled with all sorts of things so fast that I hardly remember what I did last week! Days are never boring, that's for sure!

I never did post what became of Noah's urine test 2 weeks ago. Noah's urine did show a bacteria, yet this is a bacteria that Noah has continually shown and it has been decided that this 'colonization' is normal for Noah because we do the cathater 4x a day. Noah was not showing signs of an infection (fever, pain, no appetite, etc) and we are sure that the reason Noah was under the weather is because he had the flu.
This makes determining if Noah has a bladder infection, when he shows signs of a fever, etc. will be a little more difficult and we will need to be careful not to treat him for a bladder infection too quickly. We really need to be vocal advocates for Noah, which has been such a learning curve for me!

Last week Noah had an appointment with the kidney specialists. We did not receive the ultrasound results at the appointment, but were told that no news is good news and from previous records everything looks well and Noah's one kidney is functioning well, doing all the work needed.
Considering all that his body has been through recently, this is such a blessing!

In just over 1 week now Noah will be going in for day surgery to have the port-a cath inserted. This is typically an in-and-out procedure and we pray that it will be so for Noah.
As difficult as it is to think about beinging Noah in for any type of surgery again while he is doing so well, we know that his hospital visits are far from being over and this is a much needed device for him. At Noah's pre-admit appointment for this surgery they needed to do blood work. Well, Noah fights it and screams so much it is truly heartbreaking. To top that off his veins have been poked so often that even when they do find a vein, it does not give much blood and so they didn't even get all that they needed. My poor boy!
The nice thing about this port-a cath is that it is 'hidden' under the skin, so Noah can still take baths, etc. and when it does need to be accessed, we can apply a freezing cream to the skin and it won't hurt. Nurses will no longer need to be nervous and get all sweating when they hear that Noah needs to have an IV or bloodwork done!

In other family news...my sister and brother-in-law were blessed with the birth of a healthy baby girl this past week: Talia Jacquline. After a rough start for both mother and baby they are both home and recovering, for which we may praise our Heavenly Father. She's such a precious little girl and I love her already!

'In his heart a man plans his course, but the Lord determines his steps.'
Proveerbs 16:9

Comments

  1. Oh Anne, I totally hear you on the blood work thing. Whenever I bring Micah to mac for anything requiring bloodwork/IV, I insist on having the IV team there to do it. The nurses sometimes try to brush me off as an overprotective Mom, and every time I let them "just try it" they cannot get it in. The IV team are just staff members who are exceptionally skilled at IV's and it would happen so much more quickly when they were there. You should ask if there is something like that at your hospital!

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  2. Vic does have an IV Team as well, and we always ask for them too - those 'just try's aren't worth watching him in pain. The IV Team is just as unsuccessful with Noah. I've seen them sweating while trying to do anything on Noah too. Thanks for the advice though!

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